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KMID : 0856920200230040212
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Journal of Hospice and Palliative Care
2020 Volume.23 No. 4 p.212 ~ p.227
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Development and Application of Advance Care Planning Workbooks to Facilitate Communication with Children and Adolescent Patients: A Pilot Test
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Moon Yi-Ji
Lee Jung
Choo In-Sil
Kang Sung-Han
Kim Cho-Hee
Song In-Gyu
Kim Min-Sun
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Abstract
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Purpose: This study presents the process of designing workbooks for advance care planning appropriate for the Korean cultural setting and describes actual case studies.
Methods: This study focused on single inductive case studies of the utilization of an advance care planning workbook and recruited individual participants.
Results: The workbook for adolescents contained six sessions and the workbook for children contained seven sessions. The workbook sessions led to four major discoveries: 1) considering the Korean cultural context, discussions on life and death must be held indirectly; 2) the role of the counselor as a supporter is crucial for the workbook to be effective; 3) the workbook must be accessible regardless of the seriousness of the illness; and 4) patients must be able to make their own choice between the workbook versions for children and adolescents. Six facilitating factors improved engagement: 1) the role of the counselor as a supporter; 2) building trust with the patient; 3) affirming freedom of expression on topics the patient wished to avoid talking about; 4) having discussions on what private information to keep secret and to whom the information can be disclosed; 5) discovering and regularly discussing relevant topics; and 6) regular communication and information-sharing with the patient’s medical service providers.
Conclusion: It is necessary to build on actual case studies regarding workbooks for children and adolescents in order to expand the usage of these workbooks to all relevant medical institutions in Korea.
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KEYWORD
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Palliative care, Hospice care, Pediatrics, Communication, Child, Adolescent, Young adult
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